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Living With Addison's Disease: A Guide For People With Addison's, Supporters and Professionals Kindle Edition
- ASIN : B07PNHZB1Q
- Publisher : Addison's Disease Self-Help Group; 1st edition (13 March 2019)
- Language : English
- File size : 6942 KB
- Text-to-Speech : Enabled
- Screen Reader : Supported
- Enhanced typesetting : Enabled
- X-Ray : Not Enabled
- Word Wise : Enabled
- Print length : 86 pages
- Page numbers source ISBN : 1527236641
- Best Sellers Rank: 226,880 in Kindle Store (See Top 100 in Kindle Store)
- Customer Reviews:
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Well written and lots of information I didnt know e.g. don’t eat licquorice ☹️, and it’s common to experience salt cravings. Will be passing it to my sister to read as she’s my main supporter.
This book is great for people with Addison’s, family members, friends & work colleagues/bosses. It’s a nice compact book with the essentials all these.
It covers the Sick Day Rules; which I’m still amazed so many people are not told about on being diagnosed !! It gives assistance with dosages with both hydrocortisone & prednisone.
Some of the information I already knew but always good to review your own knowledge anyway. But I leant it to my eldest son to read- and when he’d finished it, he said ‘I finally understand-thanks’.
As Addison’s is such a complex illness- it’s not simply just absence of Cortisol. The effects this has on the body & mind are numerous and can be devastating too!
Not every one ‘bounces’ back to Pre-Addison’s state (I cannot bring myself to say Normal- as our lives change dramatically). This but ok helps others understand what is effected and why. By understanding it- helps us enormously.
But there is also lots of new information, that you may not be aware of or have heard before. For me, one of these was included in the section discussing the reasons for an Addison’s Crisis (or leading to). The percentages are interesting to read , as they certainly do take into account the impact of emotional stress on some one with Addison’s Disease. This is often overlooked or played down by Dr’s & Consultants yet, so frequently experienced by us living with the illness. Another was migraines!! Something that had never been explained to me- yet, here it was in black & white as a cause!!! It made perfect sense to me & helped explain what led to a couple of previous hospital admissions!!
Honestly-my advice is buy this book!! It’s a must have.
Months later after trial and error I was able to get control of my Addisons by circadian rhythm dosing hydrocortisone, which many other Addisonians I know use too. This is not even mentioned in the book!
Whilst is is impossible to mention all the drugs that interact with hydrocortisone, I think antifungal drugs should have been mentioned as it can effectively double the hydrocortisone exposure, leading to a de-stablishing effect upon withdrawal.
After the initial read, I have not picked it up again as there are other more useful/reliable sources of information.